General References on Celiac Disease & Gluten Sensitivity
The First Year: Celiac Disease and Living Gluten-Free: An Essential Guide for the Newly Diagnosed By Jules E. Dowler Shepard. December 2008.
Back Cover Summary: Shepard explains everything you need to learn and do upon your or a family member’s diagnosis, how CD affects your entire body, how to keep your kitchen safe from cross-contamination, alcohol, celiac and fertility, finding support groups, dining out, travel and more. Day-by-day, week-by-week and month-by-month, learn how to safely alter your diet, manage your symptoms, and adjust to living gluten free.
Celiac Disease (Revised and Updated Edition): A Hidden Epidemic By Peter H.R. Green, MD and Rory Jones. January 2010.
Back Cover Summary: The true medical impacts of CD continue to emerge. This is an authoritative guide on how the condition is properly diagnosed, treated and managed. It examines the latest research into its many manifestations, with chapters devoted to related diseases including fertility, type 1 diabetes, thyroid disease, peripheral neuropathy, and even cancer. There is also a section of the book devoted to coping with the psychological aspects of a chronic illness and the gluten free diet.
The G-Free Diet: A Gluten-Free Survival Guide by Elisabeth Hasselbeck. January 2011.
Summary: For years, Elisabeth Hasselbeck couldn't figure out what was making her sick. It wasn't until spending time in the Australian Outback, living off the land on the grueling “Survivor” TV show, that her symptoms vanished. Returning home, she pinpointed the food that made her sick – gluten. In this all-inclusive book, the TV star gives you everything you need to know to start living a gluten-free life starting from defining gluten - where to find it, how to read food labels - to targeting gluten-free products, creating G-Free shopping lists, sharing recipes and managing G-Free living with family and friends.
Living Without Magazine. Monthly.
Summary: Living Without provides lifestyle solutions, and recipes that include a wide range of allergies or sensitivities, especially those that require gluten-free and dairy- free meal solutions. Issue highlights include motivational and educational features that offer buying advice and resources for alternative ingredients, new products and books, plus the latest medical news for adults and children.
Gluten-Free Living Magazine. Monthly.
Summary: Gluten-Free Living is dedicated to providing information for those who follow a gluten-free diet. Issues cover essential reading about food labeling, ingredients, medical challenges and lifestyle solutions. The magazine also reaches doctors, dietitians and other health professionals who specialize in caring for patients on a gluten-free diet.
The Whole Life Nutrition Cookbook by Alissa Segersten and Tom Malterre. October 2007.
Summary: The Whole Life Nutrition Cookbook offers readers and foods lovers a new and in-depth look at foods found in their whole form with ideas about how to prepare them. There are more than 200 delicious, nourishing recipes plus a whole lot more. The authors provide evidence-based information on food sensitivities, including ways to adapt recipes without gluten, dairy, eggs, or soy; sweet and savory whole grain baked goods that are gluten, dairy, egg, and soy-free, and a schedule for introducing solid foods to infants.
Cooking for Isaiah: Gluten-Free & Dairy-Free Recipes for Easy Delicious Meals by Silvana Nardone, forward by Rachael Ray. August 2010.
Summary: In Cooking for Isaiah Silvana Nardone takes you inside her family’s kitchen where she shows you that cooking and baking gluten and dairy-free is easier than you think. After her son was diagnosed with gluten sensitivity, the magazine editor set out to find recipes to keep her family fed…gluten free. She shares tips on creating delicious meals – from spaghetti and meatballs with garlic crumbs to chocolate chunk cookies to a tried and true all-purpose flour blend and pancake mix recipe. The pictures are marvelous!
The Gluten-Free Almond Flour Cookbook by Elana Amsterdam. July 2009
Back Cover Summary: Popular food blogger Elana Amsterdam offers ninety-nine family-friendly classics ranging from pancakes to eggplant parmesan to chocolate cake, all of which feature her gluten-free ingredient of choice: almond flour. Chapters include recipes for breakfast dishes, crackers, cupcakes, bars, and more. Because these recipes are high in protein and fiber they are also great for people with diabetes, obesity and high cholesterol. GFP favorite recipe: the Muesli Bread.
Gluten-Free Quick & Easy: From Prep to Plate Without the Fuss - 200+ Recipes for People with Food Sensitivities by Carol Lee Fenster, PhD. August 2007
Summary: Fenster reveals all her shortcuts, tips, and timesaving techniques from nearly twenty years as the gluten-free cooking authority. In Gluten-Free Quick & Easy, a hot meal makes it to the table without a complicated ingredient list or a lengthy wait. Fenster emphasizes the necessity of "planned-overs" not "left-overs" that creatively use elements of one meal in the preparation of another, whether it becomes an ingredient the next day, the next week, or the next month. Recipes for make-ahead baking mixes and techniques to shorten baking times means cooks stay on track. And her comprehensive menu plans and ideas help pull together a week's worth of meals with ease.
Cuisine For Whole Health by Pauli Halstead. October 2009.
Summary: Cuisine for Whole Health presents a straightforward argument for a diet that is gluten-free, refined-free, chemical, antibiotic and hormone-free, and Halstead includes many simple and delicious recipes honed from her years as a world-class chef. In addition to recipes, she covers topics that include: how to successfully minimize carbohydrates, optimum daily protein requirements, oils and fats that improve nutrition, key ingredients and where to purchase them, foods to avoid, how to save money by eating sustainably and more. Chapters include recipes for a good breakfast, soups, salads, condiments and sauces and how to prepare wild caught seafood, grass-fed beef, and fruit based desserts. GFP favorite: Mediterranean Orange Almond Cake.
Cooking for Your Gluten-Free Teen: Everyday Foods the Whole Family Will Love, by Carlyn Berghoff, Sarah Berghoff McClure, Suzanne P. Nelson, Nancy Ross Ryan. April 2013
Summary: With 100 recipes for teen and family favorites such as Pizza, Mac 'n' Cheese, Grilled Cheese, Sweet Potato Fries, Almond Streusel Coffee Cake, and more, Cooking for Your Gluten-Free Teen proves that teens and their families don’t have to sacrifice on foods, flavor, or convenience to eat gluten free.
Celiac Research Centers & Clinics
Beth Israel Deaconess Medical Center at Harvard University, MA
The BIDMC Celiac Center is a multidisciplinary center in New England specializing in the care of patients with CD and other gluten sensitive disorders. Internationally recognized experts —gastroenterologists, nutritionists and experts in allergy, bone health and endocrinology — have extensive experience in managing all aspects of CD including treatment of refractory sprue.
The Celiac Center at Paoli Hospital, Philadelphia, PA
The Celiac Center at Paoli Hospital provides a local resource to help manage and embrace the gluten-free lifestyle. Whether you believe you or a loved one have CD, are newly diagnosed or have lived gluten-free for years, this team is committed to helping you through it all, from screening and nutritional counseling to consultations with specialists.
Center for Celiac Disease at The Children’s Hospital of Philadelphia, PA
The pediatric celiac experts give your child expert care, from initial testing and diagnosis through long-term disease management. Your child will receive the latest information, as well as intensive support from our team of physicians, nutritionists, nurses, educators, laboratory technicians and clinical researchers. The Center provides nutrition counseling for each patient upon diagnosis and as a follow-up measure.
Celiac Disease Center at Columbia University Medical Center, NY
The Celiac Disease Center was established within the Department of Medicine at Columbia University in 2001. Its mission: to redefine the future of CD and treatment on an ongoing basis, through continuing advances in research, patient care and physician and public education. The Center provides comprehensive medical care, including nutrition, for adult and pediatric patients with CD. All of the Center’s research is directed toward celiac disease-clinical epidemiology, and mechanisms of CD and patient and physician education. The Center diagnoses and treats more than 2,000 patients annually from around the world.
Center for Celiac Research, Mass General Hospital for Children, MA
The Center for Celiac Research & Treatment is dedicated to improving the quality of life for patients with celiac disease, while learning the cause of the disease and finding a cure. Under the leadership of Alessio Fasano, MD, The Celiac Center has moved from Baltimore to MassGeneral Hospital for Children (MGHfC) in Boston,February 2013.
Digestive Disease Institute at Thomas Jefferson University Hospital, PA
The Jefferson Celiac Center is Philadelphia's first adult center with a multidisciplinary approach to CD. Specialists of the Jefferson Celiac Center have a long history of excellence in the diagnosis and management of CD as well as extensive experience in helping patients manage this lifelong condition. There is a diagnostic procedure known as capsule endoscopy that has proven extremely effective in providing images of the small bowel. Jefferson physicians are pioneers in this truly revolutionary noninvasive means of imaging the small bowel and are one of the Philadelphia area's leaders in this specialty. In fact, more than 3,000 capsule endoscopies have been performed by the highly skilled team in the Gastrointestinal Endoscopy Unit.
Kogan Celiac Center of Saint Barnabas Health Care System, NJ
The Kogan Celiac Center, located at the Saint Barnabas Ambulatory Care Center, offers comprehensive testing and treatment for CD for adults and children. The Center is dedicated to providing expert services that include early assessment and diagnosis, treatment, education and support to improve the health and well-being of those who live with CD.
Mayo Clinic Celiac Center, MN
Mayo Clinic is investigating new and innovative ways to diagnose and treat CD. Mayo's research program, sponsored by the National Institutes of Health, focuses on several aspects of CD. They include prevalence, causes, the role of genetics in predicting CD, development of animal models for the disease and the skin rash associated with CD — dermatitis herpetiformis.
Northwestern Memorial Hospital, IL
Northwestern Memorial Hospital, in the Division of Gastroenterology has a diverse medical staff that will work with you to control the symptoms that negatively affect your health and life while focusing on the treatment of your condition or disease.
Stanford Hospital Celiac Sprue Clinic, CA
The Stanford Celiac Sprue Clinic offers long term follow-up care to diagnosed CD patients.
University of Chicago Celiac Disease Center, IL
The University of Chicago Celiac Disease Center Research Program is focused on making new discoveries in the pathogenesis of CD that will impact the treatment, follow-up and diagnosis of the disease.
University of Colorado Hospital, CO
University of Colorado Hospital is ranked among the nation’s top programs for treating digestive disorders, including Celiac Sprue Disease.
University of Virginia Health System - The Digestive Health Center of Excellence, VA
Their digestive specialists have been recognized for excellence in the treatment and research of digestive disorders.
UC San Diego Health System Center for Celiac Disease, CA
In addition to advanced diagnostic techniques and nutritional counseling, UC San Diego Health System provides opportunities for you to participate in clinical trials examining new treatment options for celiac disease. To meet the clinical needs of people with celiac disease, we run a pediatric celiac disease clinic, directed by Dr. Kimberly Newton, and an adult celiac disease clinic, directed by Dr. Sheila Crowe.
Organizations and Support Groups
- American Celiac Disease Alliance: www.americanceliac.org
- American Gastroenterological Association: www.gastro.org/patient-center/digestive-conditions/celiac-disease
- Canadian Celiac Association: www.celiac.ca
- Celiac Disease Foundation: www.celiac.org
- Celiac Sprue Association CSA/USA: www.csaceliacs.org
- Children’s Digestive Health and Nutrition Foundation: www.celiachealth.org
- National Foundation for Celiac Awareness: www.celiaccentral.org
- National Institute of Health Celiac Disease Awareness Campaign: www.celiac.nih.gov
- North American Society for the Study of Celiac Disease: www.nasscd.org
- R.O.C.K. (Raising Our Celiac Kids) www.celiackids.com
Gluten-Free Restaurant Guides
- GIG (Gluten Intolerance Group): www.gluten.net
- Gluten-Free Restaurant Awareness Program: www.glutenfreerestaurants.org
- Sells pocket guides to GF restaurants, foods, prescription, over-the-counter drugs, and beer, wine and spirits: www.clanthompson.com
- Website that is regularly updated by a clinical pharmacist www.glutenfreedrugs.com